FY2024
All donations are greatly appreciated.
DM-Family to celebrate its 10th anniversary
DM-Family is proud to announce that we will celebrate our 10th Anniversary on January 19, 2026.
Since 2016, we have been engaged in many activities related to Myotonic Dystrophy.
Myotonic Dystrophy is not only a genetic disease but also a highly variable disease. We have provided extensive knowledge of care to patients and their families.
Over the next decade, we will continue to work hard to increase patient engagement for many more cures.
Together, we have the power to change the future of this disease.
A group of DM patients and their families working together and learning together for the future
To Contribute to DM Research as Patients
We work together with researchers, medical professionals, and pharmaceutical companies to help DM patients and their families achieve the same goal.
To Enrich the Hearts and Minds of Patients and Their Families
We provide patient education based on warm communication and help DM patients with a variety of symptoms to understand their disease properly.
To Raise Public Awareness About DM
We will continue to communicate how patients are struggling with myotonic dystrophy, and we strive to create a society that reaches out to those who suffer from incurable diseases.
Together with Japanese patients, we can change the future
International Collaborative Clinical Trials for DM Have Now Commenced in Japan!
In September 2024, the first international collaborative Phase 3 clinical trial for the treatment of DM began in Japan.
・Global Study of Del-desiran for the Treatment of DM1 (HARBOR)
Japanese patients will also be part of the global DM patient community in research and treatment development.
About Us
- Office location: 4-3-13 Minami-Ogikubo, Suginami-ku, Tokyo 167-0052, Japan
- E-mail : international[at]dm-family.net (English)/ contact[at]dm-family.net (Japanese)
* replace [at] with @ - English site : https://en.dm-family.net/
- Japanese site: https://dm-family.net/
- President : Akane Hatano
- Vice Presidents : Minako Sato / Yuji Akechi
- Auditor: Keiichi Tamura
- Medical Advisers : Masanori P. Takahashi, M.D., Ph.D. / Tsuyoshi Matsumura, M.D., Ph.D.