Purpose of Use of Personal Information

Personal information received from members and donors will be used to send e-mails and materials in order for the Group to contact you, inform you of our business, and answer your questions.

Prohibition of Disclosure or Provision of Personal Information to Third Parties

The Group will appropriately manage personal information received from members and donors, and will not disclose personal information to third parties except in the following cases

- When we have the consent of the member/donor

- When we disclose personal information to contractors to whom we outsource our services in order to provide services requested by our members.

- When disclosure is required by law.

Inquiry of the person in question

If a member or donor wishes to inquire about, correct, or delete his/her personal information, we will respond to the request after confirming the identity of the member or donor.

Compliance and Review of Laws and Regulations

We will comply with Japanese laws, regulations, and other norms applicable to personal information held by the Group, and will review and improve this policy as appropriate.


Please contact the following for inquiries regarding the handling of personal information by the Group.

Myotonic Dystrophy Patients’ Group of Japan

4-3-13 Minami-ogikubo, Suginami-ku, Tokyo 167-0052, Japan

international[at] dm-family.net ( replace [at] with @)





  • 会員・寄付者の方の同意がある場合
  • 会員の方が希望されるサービスを行なうために当会が業務を委託する業者に対して開示する場合
  • 法令に基づき開示することが必要である場合






特定非営利活動法人 筋強直性ジストロフィー患者会
〒167-0052 東京都杉並区南荻窪4―3―13
contact[at] dm-family.net (日本語対応です。 [at]を@に置き換えてください)